tag:blogger.com,1999:blog-61574817453423214092024-03-07T23:52:11.429-05:00A better year and life!!The trials and tribulations of my life, dealing with pseudotumor cerebri, weight loss surgery, and of course the to top the list infertility.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.comBlogger75125tag:blogger.com,1999:blog-6157481745342321409.post-33979078202515370132011-01-14T09:58:00.003-05:002011-01-15T16:57:08.969-05:00Happy New YearIt has been a while since I have blogged. So many things have changed. I decided to have weight loss surgery last year. After talking with my doctors and family it was the right decision to make. I finally got it in my head that I could not have a baby if my body was not physically ready. So now I am in the process of getting healthy and ready. I had vertical sleeve <span id="SPELLING_ERROR_0" class="blsp-spelling-error">gastrectomy </span> on December 27t<span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">h</span> 2010.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-50770967154223657252009-08-06T22:18:00.002-04:002009-08-06T22:21:58.625-04:00AccpunctureI just had my first acupuncture today to help with infertility. It was nothing like I expected. I thought I was going to start crying. I felt tingles all over and I go back for another treatment next week.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-53302267687664955722008-10-10T18:20:00.002-04:002009-08-06T22:35:57.661-04:00IVF planOk I know it has been a long time. I finally got my car back after it was repaired. That was the longest month ever.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-90365350411452424532008-07-05T23:13:00.001-04:002009-08-06T22:36:21.017-04:00the week from hellSo now I have no car and have to take my husband to airport, since he is going out town for business.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-41201798425000899672008-06-23T23:09:00.001-04:002008-07-05T23:13:45.053-04:00The storm from hellWell while I am at the baseball game with my dad enjoying myself. My husband is home alone and this storm from hell happens. Hail, rain, and winds over 60 mph. Then a tree got struck by lighting and landed on my car. I could not believe that had happened.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-38409671103453054522008-06-22T23:07:00.001-04:002008-07-05T23:09:51.693-04:00The YankeesI took my dad to see the New York Yankees. It was his father's day gift. It was so much fun. We got to see our favorite players. What a great day.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-79579877927886456912008-06-07T08:45:00.002-04:002008-06-07T08:49:21.972-04:00Next to last Depo shotI had 2nd to last depo provera yesterday. It feels so good to finally be almost done. I did not think I would be able to get through but I did. I feel like I have grown more and now are able to handle things a little better. I think things are moving in the right direction.<br /><br />My new insurance starts next month, that finally has fertility coverage. My husband and I are one step closer to start trying for our family.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com2tag:blogger.com,1999:blog-6157481745342321409.post-76662399238493210892008-04-17T18:22:00.002-04:002008-04-17T18:25:56.396-04:00Uveitis / PTC updateWell My eye doc says my uveitis is starting to calm down. Yeah!!!! I only have a few inflammation cells which is great news. The pseudotumor cerebri (ptc) is finally leveling off. I have been able to exercise more and feel great.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-81759987352245912412008-03-22T13:08:00.001-04:002008-03-23T10:04:14.692-04:00HaircolorOK, I was feeling down earlier. But there is nothing like going to salon and getting new hair color and cut. What a world of difference. That made a nice start to the weekend.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-23727036846013483842008-03-22T09:01:00.002-04:002008-03-22T09:13:39.233-04:00WaitingIt truly hit me this morning, that I have to wait another year for ivf. I know my doctor wants the best out come. But it still hurts. I know things have for a reason and maybe this it. So in the mean time I can work on me and get myself more healthy and ready for ivf. The doc does have a point but sometimes I just don't want to hear and when I do it takes a while to finally realize that sometimes he is right. I just get so sick of waiting and getting my hopes up and then get hurt.<br /><br />My poor husband just found out that 3 girls in his office are pregnant. He came home so depressed. I would have never thought it would effect him so much. I know it hurts him because we have been married for so long and wanted kids since we met. But this was the first time I have seen him express his feelings about infertility.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-25384467091721779012008-03-17T19:22:00.000-04:002008-03-20T20:07:10.959-04:00St. Patrick's Day VentWent to see my re today. Well it was bitter sweet. He thinks I have developed a cyst. Which makes me think about the endo coming back. But maybe not. He said he could not tell. His plan for me is do the depo-provera until December. I was thinking December, What the heck. I have been waiting since surgery which was in august. He feels like the depo-provera, will control my pain long term. But it looks like I developed a cyst. Plus I have to be off the depo-provera for 6 months before ivf. Which I did not know.<br /><br />I know good things come to those who wait. So there is my perfect holiday. It has always been a lucky day for me so maybe this was.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-37228605609917037522008-03-13T19:16:00.001-04:002008-03-20T19:22:14.068-04:00Nausea = PregnancyWell I have been feeling like crap. My stomach is going crazy. I was out of work one day because I have been nauseous for like 3 days. So when I go back to work , everyone kept asking me if I was pregnant. I know that is a sign of pregnancy but why do people assume. I did not want to say anything other than no I am not. I left like just screaming.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-88248939860686810572008-03-12T20:26:00.002-04:002008-03-12T20:43:40.765-04:00Mandate for IvfI was doing some research on ivf coverage for mandates. I found this site that has some information on state mandates for ivf. It is very helpful and explains the state policies.<br /><br /><a href="http://www.asrm.org/Patients/insur.html">http://www.asrm.org/Patients/insur.html</a><br /><span style="font-weight: bold;"><br /></span>I recently found out that my insurance does not cover ivf as the company is private and writes their own policy. Because of that they do not need to go by the mandate.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-35559664198952690912008-03-11T20:12:00.002-04:002008-03-11T20:23:56.461-04:00RE appt for 2nd depo-provera shotI finally put a call into my doc because I could not take the cramps anymore. I thought maybe the endo was coming back. I do not want to thru that again or lose another tube. They did an ultrasound and said everything looked fine. So thank you god. Now I know that this spotting and cramping is just side effects.<br /><br />I was going to start ivf this month but it is just not working that way. My insurance does not cover ivf which I just found out and I live in a state that has a mandate, that will cover up to 3 cycles. So I will be switching insurance this summer and then ivf. I know it will be worth the wait. I know there are no guarantees but I will at least be given a chance.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-87113182047617183362008-03-09T12:52:00.003-04:002008-03-09T13:10:26.734-04:00ThinkingI don't know what is happening to me. The depo-provera is suppose to help me. But I feel like crap. I should not be feeling like this. I would rather be on lupron than this crap. I hope my endo is not coming back.<br /><br />I keep thinking maybe I should try on my own as my re does not want me to but my neurologist does not want me to do ivf until I can get the pseudotumor cerebri (ptc) under control. I am 32 yrs old and can not wait forever. I know when I do get pregnant the pregnancy will be hard.<br /><br />So one doctor says no ivf the other says yes.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-22534290411110937732008-03-02T00:06:00.002-05:002008-03-02T00:09:37.209-05:0032nd BirthdayWell I just had my 32nd birthday and it was a pretty good day. I cant believe I am 32. I feel so much better about myself since I first turned 30. When I was in my 20's I had no idea about things or life. Tonight I went to dinner with my husband and parents. Then we went to a movie. I had such a relaxing time. It was great. I think things are looking better and I am feeling better.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-50603960059032708862008-02-26T17:15:00.003-05:002008-02-26T17:23:08.192-05:00Updateknow what is causing it. I have been pricked pocked and scanned with only knowing I am I just wanted to update, on what is happening with me. My Uveitis is clear for now. But I know I am hla-b27 and hla-b58 positive which really does not mean anything other than I might develop back problems.<br /><br />The pseudotumor is another issue. I went to see a new neurologist and she basically told me that the pseudotumor would go away if I just lose weight. I have lost over 35lbs and it is still there. So I'm not sure her theory is right.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-40506558901736867352008-02-01T17:35:00.000-05:002008-02-01T17:38:58.177-05:00depo-provera maybe crap?Well I have been feeling great until about 3 days ago. I dont understand. Started having cramps and spotting again. What the hell. I thought the depo-provera was going to help? Who are they kidding.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-7771997529593204882008-01-11T20:54:00.000-05:002008-01-11T20:57:36.378-05:00Ankylosing Spondylitis?Well I went to my eye doctor yesterday and I got the results of my blood work and I have positive HLA-B27 which my uncle has. This truly makes sense why I have Uveitis. So maybe going to the doctor in Boston was not such a waste of time after all.<br /><br /><br />Symptoms today: eye pain, just over all achy.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-88621974780333721432007-12-28T17:18:00.000-05:002007-12-28T17:26:04.576-05:00IVF Here I comeI had such a great appointment with my doctor. <span class="postbody">He did an u/s and looks like the endo is calm and ovaries looked good. My re wants us to do ivf, since the endo was so so aggressive. But he really thinks that its going to work. He said I could try on my own but since the endo was so aggressive that it could come back before we get pg. I can not wait for the endo to come back and start over and be in pain again. So Dh and I decided to go this way and the doctor gave me a depo-provera shot until our ivf cycle. </span>Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com1tag:blogger.com,1999:blog-6157481745342321409.post-61253141595016733702007-12-16T00:19:00.000-05:002007-12-16T00:21:14.732-05:00The Tula's Efled for the holidays<span style="font-size:85%;"> The Tula's Elfed for the holidays. I thought this was so cute. I hope you enjoy. Click on the link to see us as elf's.<br /><br />Merry Christmas and Happy Holidays<br /><br /><a href="http://http://www.elfyourself.com/?id=1258702271">http://www.elfyourself.com/?id=1258702271<br /></a><br />C&S</span>Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-51797072345329138642007-12-08T12:56:00.000-05:002007-12-08T13:21:20.522-05:00The trip from HellThe day started off crappy because I was wearing a white shirt and while at work got a long black stain across my boob. After I got my shirt cleaned everything was going smoothly until we got into Boston. I love Boston but driving in downtown Boston I'm not so sure. My mom and I got totally lost for over an hour and half. I has called the clinic to let them to I was lost and asked for directions. One of the staff members was able to give clear directions.<br /><br />specialist was going to give me the answers I needed. It turns out that it was just a big waste of time. That guy asked me "why I was here". I'm like what? This doctor is looking at me like I am nuts. He did not understand why I was there. This guy is supposed to be the top in his field so I would think he could have done something for me. His conclusion is go home have immunology Finally got there and had to wait. I know it was going to be long but 4 hours? I had no idea. When I did finally get seen by a doctor it was not what I was hoping. I thought the Uveitis bloodwork and then we will talk. I am so angry I just want to cry.<br /><br />Maybe if I had a flare up things might have been different. I have not had a flare up since October and in November I was finally clear of it for the first since I ever started with this crap. I thought that I would not take my eye drops for a entire week hoping that I would get a flare up but nothing. I know he has helped other people but I am just not sure if I want to go back to him.<br />We finally leave the clinic after 6:30 and got lost again. I could not believe it. It was a nightmare. This time almost 2 hours lost and thought I am never getting out of this city. We asked about 5 different people and they did not even know what we were asking. As if we had two heads or something. Finally got home around 11pm.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-34787370589194216582007-12-02T10:00:00.000-05:002007-12-02T10:08:32.180-05:00lupron hell/Uveitis Appt.It has been a month since I had my last lupron shot. The side effects have been killer. The one that I hate the most is the night sweats. There is nothing like waking up soaked with water and warm. The hot flashes are ok but hard to deal with at work. I have a fan sitting right next to me. The add-back therapy does seem to help a bit but will be glad to be off of it.<br /><br />I'm very nervous about my specialist appointment. I know it will be a long a consult but worth it to find out why I am still dealing with the uveitis. It has been 9 months of eye drops. From what I hear the specialist is top in his field and might just be the best in the world. So I know he will give me some answers I am looking for.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-34493600989074744982007-11-17T12:36:00.000-05:002007-11-17T12:38:23.743-05:00lupron final monthWell, I have been having the worst mood swings the past couple of days. The hot flashes are really starting to annoy me. I hope this does not last much longer.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0tag:blogger.com,1999:blog-6157481745342321409.post-51917243519460611632007-11-14T15:19:00.001-05:002007-11-14T15:27:13.772-05:00Last Lupron shotI had my last lupron shot on friday. I can not believe it. Thank goodness as I am getting sick of the hot flashes. They are coming more often now and getting very annoying.Chttp://www.blogger.com/profile/15589610281542827145noreply@blogger.com0